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Caring For Children With Cystic Fibrosis

2560 words - 11 pages

Being diagnosed with a chronic illness is a life-altering event. During this time, life is not only difficult for the patient, but also for their loved ones. Families must learn to cope together and to work out the best options for the patient and the rest of the family. Although it may not be fair at times, things may need to be centered on or around the patient no matter what the circumstance. (Abbott, 2003) Sacrifices may have to be made during difficult times. Many factors are involved when dealing with chronic illnesses. Coping with chronic illnesses alter many different emotions for the patients and the loved ones. Many changes occur that are very different and difficult to get used to. (Abbott, 2003) It is not easy for someone to sympathize with you when they haven’t been in the situation themselves. No matter how many books they read or people they talk to, they cannot come close to understanding.

Along with the problems of chronic illnesses themselves, many other problems may come. Treatments and medications are just the beginning of things when it comes to problems with illnesses. With cystic fibrosis, you start out with a high number of medications and treatments to begin with. The older you get and the worse your condition gets, the more you take. (“Psychological impact,” n.d.) Many struggles come along with taking these medications and treatments. When children are first diagnosed with cystic fibrosis, they are typically very young. From the beginning, there are many medications and treatments that needed to be taken and done. Sometimes, trying to get children to take medications and treatments is like pulling teeth. The medications for cystic fibrosis are extremely important. If cystic fibrosis patients miss medications or treatments, things may be changed drastically, and they may have to be hospitalized if things get too extreme.
From reading different stories and talking to different people, I have seen both sides of children when dealing with taking medications and treatments. From reading the book Breathing for a Living: A Memoir, I saw the more positive and better side when taking treatments and medications. Although, things are a little different in this story because the main part of the story focuses on the girl when she was older. When looking at the girl’s story and illness overall, she handles things really well. She always remains a positive person throughout the book even when the worst of things are going on. Although she remains positive when it comes to her condition, you can tell that her illness affects her emotional and psychologically. (Breathing for a Living: A Memoir, 2004) When dealing with chronic illnesses such as cystic fibrosis, you can’t always grow up like other children. Cystic fibrosis is a very serious illness that at times involves strict treatment. With cystic fibrosis you are more susceptible to getting sick and having a poor immune system. With cystic fibrosis you have to very carefully take...

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