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Cystic Fibrosis Government Support Essay

991 words - 4 pages

Cystic Fibrosis, though not exceedingly common among Americans, deserves additional attention from the United States government. Because of the scarcity of individuals inflicted with this Cystic Fibrosis, the disease is often overlooked by institutions such as the National Institute for Health, which is the main source for government funded researching for all diseases (Case Overview, Funding for CF Research). Fighting Cystic Fibrosis requires an immense amount of energy, pain tolerance, medication, will to live, and courage in the individual with the disease. Families with a member burdened with the disease also need vigorous drive to encourage their loved-one throughout their pain, while they often attempt to conceal the suffering their hearts undergo. Atop all of these irrepressible struggles lay perhaps the most irreparable factor of all--the financial cloud that looms over the family, draining their accounts with little aid from their insurance. One of the only alleviates to the burdens placed on those with Cystic Fibrosis is a nonprofit, nongovernment organization known as the Cystic Fibrosis Foundation, which relies solely on donations (Cystic Fibrosis Foundation). To lift the vail of financial despair, the United States’ government should take it upon itself to increase awareness, research, and monetary support.
The issue with the government lays not in the fact that no money at all is given, but the fact the money granted toward advancing research is not specific to certain diseases. “NIH receives budgetary substantial support from the Congress, and its appropriation for 2002 was $23.4 billion” (Case Overview, Funding for Cystic Fibrosis Research). Thankfully, since then, the United State’s government has increased their investments to $30.9 billion in medical research for a wide range of diseases in all Americans (NIH Budget). Although, approximately 80% the total of that money is awarded through around 50,000 competitive grants (NIH Budget). The remainder of that money is divided among innumerable diseases’ research; unfortunately, the amount of individuals in America incapacitated by Cystic Fibrosis is relatively small in comparison to the millions of Americans imposed by diseases such as diabetes, cancers, and other equally wretched illnesses. Due to this fact, the 30,000 Americans burdened by Cystic Fibrosis are often pushed to the side, viewed as the less important of the brew (Case Overview, Funding for CF Research). Who defines which diseases are more gruesome than others? Those who bear the burden of Cystic Fibrosis deserve as much attention and care as any other disease, even if their days and people are numbered fewer than most. Thankfully in the past few years the Government has made changes to the United States healthcare plan, providing those with Cystic Fibrosis said care and attention.
Changes in the United States healthcare plan due to the Affordable Care Act (ACA), more commonly known as Obamacare, both...

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