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Edward's Syndrome Essay

1175 words - 5 pages

Cystic fibrosis

Lifetime treatment

70,000 worldwide

Exomphalos


Operable
1 in 3,000 live births

Gastroschisis Operable
1-5 per 10,000 live births

Down syndrome (Trisomy21)

Untreatable

1 in 700-900

PatauSyndrome (Trisomy13)

Very limited life rate

1 in 10,000
Edwards' Syndrome (Trisomy18 Newborns have a 40% chance of surviving to age 1 month. Infants have a 5% chance of surviving to age 1 year. Children have a 1% chance of surviving to age 10 years.
[Source: patient.co.uk] (patient.co.uk)
1 in 6,000
Survival, and Recurrence Risk
Parental Concerns

Parental concerns are mostly essential in Edwards’s syndrome. They need counselling regarding their family relationships. But the children and parents need more psychological support especially for mother, because mother is the sufferer of Edward syndrome babies.

(http://www.ipmms.org/Thesis%20for%20Web/Chapter%202.pdf)

Role of Health Care Professionals:

The evolving management of children without medical intervention may dependent on strategies and need to be implemented for neo natal babies. Most of conditions have no treatment but some cases they need to prolong the treatment time. But in some cases the parents need to be encouraged by healthcare professionals the trend has been implemented by largely physician-directed model of medical decision making to a collaborative model, which mean respect to the parent’s decision by making health care decisions for their children’s effective medical treatment .In these approach mostly goal directed to quality treatment and effective decisions made by the health care professionals and parents. Inclusion of pregnancies that are prenatally diagnosed is critical for accurate surveillance and population-based analyses of these conditions
(CriderKS, 2008)
Management plans should be goal-directed, depends up on the parent-health professional evaluation of the benefits and burdens of care options for the individual child (lorenzJm, 2014 feb 6). “Health care is too important to leave to the health care professional.” That means they are primary people to maintain their health information and provided to the doctors, which means provide the clear information clear information about the parents questions and doctor suggestions .but the required information in the data bases regarding the Edwards diseases should be updated, but by the parents support and But the updated information is very essential for doctors to study new cases; modern health care management is based on scientific evidence. Example: Significant is recent public awareness of Senator Rick Santorum’s three year old daughter, Bella, who has trisomy18. Mostly the Edwards syndrome is affected in all countries with available statistics. Health care management is essential to take the step in creating awareness, the doctors for updating the diseases information with support of children’s parents. By these there is...

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