Genetic Information Vs Privacy Essay

843 words - 3 pages

The genetic technology revolution has proved to be both a blessing and a blight. The Human Genome Project is aimed at mapping and sequencing the entire human genome. DNA chips are loaded with information about human genes. The chip reveals specific information about the individuals’ health and genetic makeup (Richmond & Germov 2009).The technology has been described as a milestone by many in that it facilitates research, screening, and treatment of genetic conditions. However, there have been fears that the technology permits a reduction in privacy when the information is disclosed. Many argue that genetic information can also be used unfairly to discriminate against or stigmatize individuals (Willis 2009).
Doctors, hospitals and other care providers dispute that they should have access to the medical records and other health information of any patient citing that they need this information to provide the best possible treatment for proper planning. Insurers on the other hand claim they must have personal health information in order to properly process claims and pay for the care. They also insist that this will provide protection against fraud. Government authorities make the same arguments saying that in providing taxpayer-funded coverage to its citizens, it has the right to know what it is paying for and to protect against fraud and abuse. Researchers both medical and none nonmedical have the same argument saying that they need access to these information so as to improve the quality of care, conduct studies that will make healthcare more effective and produce new products and therapies (Easthope 2005).
All these arguments when analyzed are valid. This has brought about ethics issues that are involved with increased use and release of personal medical information. It is important that researchers and Insurers be given access to this information to improve research and when making claims respectively. But when those involved in these legitimate activities make demands that seem inappropriate, the records must be protected. Disclosure of personal medical information should also be subject to patients’ or families’ consent (Richmond et al. 2009).
Although the gene chip will enable an individual to know whether he/she has a genetic disease, that person may not want to know the information. Many people are frightened that a positive finding on a genetic test will result in discrimination and ostracism because the society will consider them abnormal (Easthope 2005). The other concern is that with genetic test information one might lose or might be unable to get a job or insurance. There have been concerns that with the knowledge of one’s medical...

Find Another Essay On Genetic Information vs Privacy

Privacy in the Workplace Essay

1612 words - 6 pages to genetic testing invading privacy is that it reveals information about an individual that can hinder their livelihood without their discretion. “Only in the ‘exceptional cases’ should ‘the use of genetic screening… be considered… [and] the performance of the test does not prejudice the aim of improving conditions in the workplace’ (Holtzman, 2003). If a test is conducted without the consent of the individual, its use should only be for a

History of human genome project Essay

1797 words - 7 pages prompted the formation of the NHGRI's Ethical, Legal and Social Implication (ELSI) Research Program in 1990. This program focuses on the policy development related to the privacy and fair uses of genetic information, particularly in health insurance, employment and medical research; and public and professional education about these issues (NHGRI, 2003).There has been much debate over the use of genetic sequencing that could not only predict an


713 words - 3 pages issues exist from taking other people’s cells. If somebody relinquishes a cell line to researchers, and it is successful, that cell line is likely to have its genome mapped. This means that the original donor has their genome public without having first given approval. Almost all the genetic information about that person is out, and their privacy has been invaded. The genome in your body is all the genetic instructions that make you up. If this

Employee Privacy Rights in the Workplace

1754 words - 7 pages or disease related genes. Requiring workers or potential employees to submit to genetic testing also raises moral and ethical questions. For many individuals, forced genetic testing could be perceived as an invasion of privacy. Many workers might fear genetic information gathered will be used unfairly by employers to form the basis of hiring, promotion, termination, and health care decisions. Advocates of genetic screening argue it would reduce

Genetic Screening

3282 words - 13 pages , education, adoption and in military aspects; impact of genetic information on individuals; personal privacy and confidentiality of genetic information; the impact that the dramatic increase in human genetic information will have on genetic counseling and the delivery of genetic services; influence of genetic information and new technologies on reproductive decisions; issues raised by the introduction of new genetic information and technologies

Genetics, Genetic Research and Cloning The Human Genome Project

1996 words - 8 pages potential ethical, legal and social implications. These concerns prompted the formation of the NHGRI's Ethical, Legal and Social Implication (ELSI) Research Program in 1990. This program focuses on the policy development related to the privacy and fair uses of genetic information, particularly in health insurance, employment and medical research; and public and professional education about these issues (NHGRI, 2003).There has been much debate

A Legal Analysis of Genetic Screening

1939 words - 8 pages information to the employer that is typically kept between a worker and his/her doctor. However, if a worker is susceptible to a particular toxin that he/she would potentially be exposed to, it seems beneficial to both parties if this is known ahead of time. An employee's privacy may be greatly compromised by genetic testing, but it may also help to avoid future health problems for that individual. With this ethical concern constantly in the back

The Future of Genetic Engineering

653 words - 3 pages even greater than that of which was experienced with sickle cell anemia in the 1970s (Girdley 974). It is possible that insurers may require genetic testing as a prerequisite for coverage and may have the ability to refuse to cover an individual if they contain a certain genetic defect (Gridley 975). Genetic discrimination raises various policy concerns, including those of autonomy, privacy, and justice, because a person’s DNA can be a

Ethical Issues of Genetic Research

1284 words - 5 pages of religious obligations, exists the more general and basic issues of privacy and exploitation. Questions concerning these issues arise form the tendency of industry to capitalize on scientific information regardless of individual rights. The practice of genetic screening for profitable purposes illustrates this concept. Insurance companies are increasingly considering using genetic tests to assess the level of premiums that policy-holders must

Health Insurance Portability and Accountability Act (HIPAA)

1793 words - 7 pages specifies that the individual subjects must be identifiable in order to be considered human subjects; thus research with only coded information would not be considered research with human subjects and would not be subject to the Common Rule (Rothstein). Therefore, research in which the subjects' information is coded may be subject to the Privacy Rule but not the Common Rule (Rothstein).The status of unlinked DNA samples is the fifth issue. Genetic

The Legality And Ethics Of Business Background Checks

2020 words - 9 pages methods for protecting and sharing health data. (Medical Privacy - National Standards to Protect the Privacy of Personal Health Information, 2006) The Genetic Privacy Act, is a proposal for federal legislation. (Annas, Glantz & Roche, 1995) The Act is based on the premise that genetic information is different from other types of personal information in ways that require special protection. It is an unlawful employment practice for an employer

Similar Essays

The Double Helix Possesses All: Privacy Issues In The Us

2358 words - 9 pages boundaries. In America, the police also have the right to collect DNA without a warrant at a crime scene. The collection of DNA is “an abolition of private property” since the police seizes a valuable piece of information that biologically identifies an individual (Orwell 206). Apart from crime scene related activities, another way to abuse genetic privacy is through infidelity testing, a DNA test which allows for a mother to check a child’s

Human Genome Project Essay

2369 words - 9 pages Outline Thesis: Large corporations, such as insurance companies, and governments are looking to save money on future policyholders through the use of genetic testing. General information on the Human Genome Project Time of discussion leading up to implementation Who was involved Where does the funding come from Insurance Companies and discrimination Discrimination against unborn children Genetic testing for “bad'; or unwanted

Public Or Private? Essay

1063 words - 5 pages characteristics through digital means for consumer convenience could become a treasure trove for hackers” (“Privacy vs. Convenience”). It is safe to believe that any information a person stores or anything they do on their smartphone is at risk of being hacked if they do not take the appropriate precautions. “The collection of personal information has become so ubiquitous that even staunch privacy advocates now say it’s impossible to build a protective

Genetic Testing In Humans Essay

1534 words - 6 pages from treatable diseases while also causing controversial issues including privacy concerns, misuse, and discrimination. Technology today has in turn led to a new generation of genetic testing. Works Cited "Genetic Testing." Genetics and Genetic Engineering. Barbara Wexler. 2011 ed. Detroit: Gale, 2011. Information Plus Reference Series. Opposing Viewpoints in Context. Web. 1 Mar. 2014. "Genetic Testing." Opposing Viewpoints Online Collection